Oscar's Law for Better care for sick babies and children

I am creating this group in the hope that i can stop a very sad but very common situation occurring in many neonatal intensive care and pedeatric intensive care units across the country! The NHS unfortunately as we all know is a very sad state of affairs and budgeting is inevitably happening throughout but many doctors are now making life saving decisions based on the cost to the nhs rather than what they are there to do and that is if possible SAVE A LIFE!

Every parent that has ever had a very poorly child in an intensive care unit is most likely very aware of and possibly experienced themselves the heartbreaking reason i am creating this group and that is the negligent care given to my son during his 4 month stay on these such units due to lack of beds, budgeting and future cost to the NHS, resulting in us losing our little angel.

Before i tell you my storey i must state that this group is being created in regards to cost cutting in areas where it is desperately needed, And the treatment received once a doctor feels that there is no point in saving your child based on a DISABILITY! I am in no way slating intensive care and paediatric care units as a whole in fact these units do save lives and are a pure godsend to thousands of babies, children and their family's on a daily basis!

One of the main areas of concern is for that of premature baby's, a huge debate is under-way in the country on a regular basis as to weather a child should be saved as early as 23 weeks, but it seems that other areas around this topic are not being accessed like ways to prevent and detect early labour, ways to ensure adequate numbers of nurses on the wards and the main issue BEDs or COTs and the extreme lack of them resulting in hundreds of very sick babies being transported by ambulance to other hospital's when they are really not fit to travel! The majority of people see doctor's as people that you can trust and you trust a doctor with your child's life and in the majority of cases this is the case and thank god for these people but there are circumstances from within the NHS when parent's have found themselves pushed into a corner, bullied and untrusting in the doctor caring for there child due to the circumstances surrounding them and this is a very scary situation as when the only person that can save your child does not want your child to survive what do you do?

Although it is illegal for a doctor to remove care from a child without legal permission or a parent's permission unfortunately it does still happen and there is nothing you can do absolutely NOTHING as when a team of doctor's make a decision however against it you the parent's and the nurses caring for your child are, illegal actions can be taken and as long as this is covered in medical notes you have no way of proving it and living knowing that a group of doctor's are allowed to continue practising medicine after what they put your child through is a very hard thing to live with I live in hope that the government can stop sick children being shipped from hospital to hospital when they are to ill to be moved, for the government to provide better help and finances to the future of this World CHILDREN!

And for us the parent's to have more right as although legally we do, this unfortunately did not stop the doctor's in my case from a lot of deception and lies. So i am calling for all parents to have immediate access on a daily basis to their child's medical notes while in hospital and the right to have an advocate record all meetings when requested so no more deception can take place! Unfortunately i was refused this many many a time!