Ehlers-Danlos Syndrome is a group of genetic disorders involving mutations in connective tissue characterized by looseness, instability, and dislocations of… read more
There is only one HMS specialist in Scotland, Prof. Ferrell in Glasgow, many of us sufferers in Aberdeen/Aberdeenshire cannot travel… read more
In Ireland, funding for Treatment Abroad for Irish Citizens with rare conditions including Ehlers Danlos Syndrome is frequently refused despite… read more
This toolkit set out in 2018 introduced the latest thinking in EDS, including new approaches to diagnosis and treatment set… read more
