- Target:
- provincial governments
- Region:
- Canada
- Website:
- www.pnhca.org
While Health Canada has approved the use of the drug, the Provincial Governments do not cover the costs of Soliris, the only medication available that can control a disease that causes the body to attack its red blood cells.
Canadians with Paroxysmal Nocturnal Hemoglobinuria (PNH), many of them in the prime of their lives, are dying simply because they are being denied the only life-saving treatment available to them in Canada. PNH is a very rare and debilitating disease affecting the blood and major organs.
Although a treatment – Soliris – was approved almost two years ago by Health Canada, the few patients who are suffering with this fatal disorder are still unable to access this life-saving treatment because provincial drug programs are not funding it. For some patients, it is already too late.
Soliris allows a patient’s life expectancy to return to that of a healthy person. Without access to this treatment, Canadians with PNH will continue to die. There is no time to waste.
Please sign the petition below to tell provincial governments to act now to ensure that all PNH patients have access to Soliris through public funding.
You can further help this campaign by sponsoring it
The Join the Fight Against PNH petition to provincial governments was written by Barry Katsof and is in the category Health at GoPetition.