- Target:
- Genera public
- Region:
- United States of America
National medical organizations' current policies permit clinicians to knowingly and willfully promote a false genetic narrative by withholding factual genetic parentage information from a child(ren) as well as the genetic or non-genetic parent(s). This concealment can result in:
- falsified medical records (note - medical records legal documents),
- misinformed and potentially dangerous health care decision-making,
- a failure to assess on-going harms, particularly to children,
- a failure to provide therapeutic interventions, particularly for children,
- clinicians' engagement in other ethically and legally dubious actions,
- family cycles of silence, secrets, and shame, and
- a failure to create long-term solutions built on autonomy, honesty, trust and factual data.
This petition urges the American Academy of Pediatrics, American Society of Human Genetics, National Society of Genetic Counselors, and American College of Medical Genetics and Genomics to:
= update their antiquated, flawed misattributed parentage policies,
- promote actionable recommendations that endorse the disclosure of and use of factual genetic data for health care decisions,
- promote research that examines the adverse consequences of clinicians falsifying genetic data, particularly for children,
= promote research that examines how clinicians can compassionately and effectively disclose factual genetic data, particularly to children,
- hold clinicians accountable for knowingly and willfully falsifying legal documents such as medical records
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