http://gopetition.com/signatures/wound-care-bill-petition-for-eb-patients.html Online petition signatures en-us Fri, 24 Apr 2026 05:58 UTC GoPetition RSS Feed Generator Copyright 2026 GoPetition https://gopetition.com/signature/locate/23407930?utm_medium=rss Thu, 2 Jan 2020 01:33:25 UTC 23407930 https://gopetition.com/signature/locate/21267987?utm_medium=rss The fact that we must go so far to have a petition just for proper medical care for people with critical conditions is ridiculous. I hope this petition helps.

]]> Sat, 15 Apr 2017 12:37:28 UTC 21267987 https://gopetition.com/signature/locate/19436823?utm_medium=rss Thu, 5 Nov 2015 10:56:26 UTC 19436823 https://gopetition.com/signature/locate/19434601?utm_medium=rss Wed, 4 Nov 2015 06:28:44 UTC 19434601 https://gopetition.com/signature/locate/19244965?utm_medium=rss Mon, 31 Aug 2015 08:29:21 UTC 19244965 https://gopetition.com/signature/locate/19243984?utm_medium=rss This situation needs to change!! Families with children who suffer from EB have enough to deal with & shouldn't have to worry about paying for basic medical supplies!!

]]> Mon, 31 Aug 2015 02:26:50 UTC 19243984 https://gopetition.com/signature/locate/19243961?utm_medium=rss We need to help these children who are in pain 24/7 .

]]> Mon, 31 Aug 2015 02:18:42 UTC 19243961 https://gopetition.com/signature/locate/19243927?utm_medium=rss Please allow patients suffering from EB to receive the supplies they need to simply live. The co-pays are staggering and families already have a huge burden on them regarding regular care of these young kids and their daily medical needs.

]]> Mon, 31 Aug 2015 02:08:05 UTC 19243927 https://gopetition.com/signature/locate/18922375?utm_medium=rss Wed, 27 May 2015 08:55:13 UTC 18922375 https://gopetition.com/signature/locate/18784366?utm_medium=rss Mon, 20 Apr 2015 02:38:33 UTC 18784366 https://gopetition.com/signature/locate/18779523?utm_medium=rss Sun, 19 Apr 2015 06:20:58 UTC 18779523 https://gopetition.com/signature/locate/18706762?utm_medium=rss Hi i know what this family is going threw my mom has open wounds on her legs for the last 19 yrs or more and has to buy supplies on her own even though she has medicare and sometimes has to do without if other family can't help

]]> Fri, 27 Mar 2015 04:24:16 UTC 18706762 https://gopetition.com/signature/locate/18545287?utm_medium=rss Sun, 15 Feb 2015 05:54:03 UTC 18545287 https://gopetition.com/signature/locate/18437656?utm_medium=rss Sat, 17 Jan 2015 10:54:11 UTC 18437656 https://gopetition.com/signature/locate/18375252?utm_medium=rss Tue, 13 Jan 2015 12:48:42 UTC 18375252 https://gopetition.com/signature/locate/18333623?utm_medium=rss Please cover all that is needed to take care of baby Ethan.

]]> Sat, 10 Jan 2015 05:28:53 UTC 18333623 https://gopetition.com/signature/locate/18323328?utm_medium=rss Fri, 9 Jan 2015 09:47:35 UTC 18323328 https://gopetition.com/signature/locate/18319905?utm_medium=rss Thu, 8 Jan 2015 09:53:16 UTC 18319905 https://gopetition.com/signature/locate/18319267?utm_medium=rss Thu, 8 Jan 2015 08:24:32 UTC 18319267 https://gopetition.com/signature/locate/17734862?utm_medium=rss Mon, 11 Aug 2014 12:12:04 UTC 17734862 https://gopetition.com/signature/locate/17692194?utm_medium=rss Sun, 3 Aug 2014 11:40:29 UTC 17692194 https://gopetition.com/signature/locate/17310322?utm_medium=rss Fri, 16 May 2014 11:53:53 UTC 17310322 https://gopetition.com/signature/locate/17309193?utm_medium=rss PLEASE pass this bill for EB patients! Wound care, these bandages, the ointments, are all CRITICAL to their very survival! There is no way to pay for this unless you're very rich..I don't know ANY very rich people in todays world..PLEASE let's get this bill pushed through! <3 Baby Easton, EB FIGHTER and not even 2 years old yet!

]]> Fri, 16 May 2014 08:11:20 UTC 17309193 https://gopetition.com/signature/locate/17275040?utm_medium=rss Sun, 11 May 2014 08:46:33 UTC 17275040 https://gopetition.com/signature/locate/17275037?utm_medium=rss Sun, 11 May 2014 08:45:25 UTC 17275037 https://gopetition.com/signature/locate/17274405?utm_medium=rss No question insurance should cover these needs!

]]> Sun, 11 May 2014 04:00:26 UTC 17274405 https://gopetition.com/signature/locate/17272223?utm_medium=rss Sun, 11 May 2014 08:35:10 UTC 17272223 https://gopetition.com/signature/locate/17272152?utm_medium=rss Sun, 11 May 2014 08:16:49 UTC 17272152 https://gopetition.com/signature/locate/17272139?utm_medium=rss Sun, 11 May 2014 08:14:37 UTC 17272139 https://gopetition.com/signature/locate/17272019?utm_medium=rss Sun, 11 May 2014 07:24:50 UTC 17272019 https://gopetition.com/signature/locate/17271940?utm_medium=rss Sun, 11 May 2014 06:57:22 UTC 17271940 https://gopetition.com/signature/locate/17271924?utm_medium=rss Sun, 11 May 2014 06:51:25 UTC 17271924 https://gopetition.com/signature/locate/17271835?utm_medium=rss Sun, 11 May 2014 06:10:02 UTC 17271835 https://gopetition.com/signature/locate/17271810?utm_medium=rss Sun, 11 May 2014 05:59:09 UTC 17271810 https://gopetition.com/signature/locate/17271797?utm_medium=rss Children should be entitled to free medical treatment

]]> Sun, 11 May 2014 05:54:16 UTC 17271797 https://gopetition.com/signature/locate/17271699?utm_medium=rss I can't even believe bandages are not covered....This it's a crime. The simplest of changes in these individuals' insurance policies would make a world of difference.

]]> Sun, 11 May 2014 05:10:42 UTC 17271699 https://gopetition.com/signature/locate/17271660?utm_medium=rss Sun, 11 May 2014 04:51:32 UTC 17271660 https://gopetition.com/signature/locate/17271650?utm_medium=rss Sun, 11 May 2014 04:47:30 UTC 17271650 https://gopetition.com/signature/locate/17271614?utm_medium=rss Sun, 11 May 2014 04:30:01 UTC 17271614 https://gopetition.com/signature/locate/17271570?utm_medium=rss Sun, 11 May 2014 04:12:32 UTC 17271570 https://gopetition.com/signature/locate/17271566?utm_medium=rss Sun, 11 May 2014 04:09:39 UTC 17271566 https://gopetition.com/signature/locate/17271496?utm_medium=rss Sun, 11 May 2014 03:38:14 UTC 17271496 https://gopetition.com/signature/locate/17271489?utm_medium=rss Sun, 11 May 2014 03:34:42 UTC 17271489 https://gopetition.com/signature/locate/17271397?utm_medium=rss Please help people who are suffering.

]]> Sun, 11 May 2014 03:03:03 UTC 17271397 https://gopetition.com/signature/locate/17271250?utm_medium=rss Sun, 11 May 2014 01:28:05 UTC 17271250 https://gopetition.com/signature/locate/17271211?utm_medium=rss Sun, 11 May 2014 12:57:51 UTC 17271211 https://gopetition.com/signature/locate/17271208?utm_medium=rss Sun, 11 May 2014 12:52:12 UTC 17271208 https://gopetition.com/signature/locate/17271205?utm_medium=rss Sun, 11 May 2014 12:46:41 UTC 17271205 https://gopetition.com/signature/locate/17271204?utm_medium=rss Sun, 11 May 2014 12:46:27 UTC 17271204 https://gopetition.com/signature/locate/17271195?utm_medium=rss Sun, 11 May 2014 12:38:25 UTC 17271195 https://gopetition.com/signature/locate/17271193?utm_medium=rss Sun, 11 May 2014 12:37:09 UTC 17271193 https://gopetition.com/signature/locate/17271192?utm_medium=rss Pay for easton and all people like him bandages.

]]> Sun, 11 May 2014 12:36:56 UTC 17271192 https://gopetition.com/signature/locate/17271184?utm_medium=rss Please help these families with this basic yet vital need! There is no reason why they should not have their wound care needs provided for!

]]> Sun, 11 May 2014 12:31:26 UTC 17271184 https://gopetition.com/signature/locate/17271172?utm_medium=rss Sun, 11 May 2014 12:24:56 UTC 17271172 https://gopetition.com/signature/locate/17271158?utm_medium=rss Sun, 11 May 2014 12:20:37 UTC 17271158 https://gopetition.com/signature/locate/17271157?utm_medium=rss These kids are innocent and their poor parents are striving to take care of them! Please make it easier!!

]]> Sun, 11 May 2014 12:20:12 UTC 17271157 https://gopetition.com/signature/locate/17271152?utm_medium=rss Sun, 11 May 2014 12:14:02 UTC 17271152 https://gopetition.com/signature/locate/17271150?utm_medium=rss Sun, 11 May 2014 12:13:14 UTC 17271150 https://gopetition.com/signature/locate/17271143?utm_medium=rss Sun, 11 May 2014 12:08:52 UTC 17271143 https://gopetition.com/signature/locate/17271142?utm_medium=rss If you lived one day in these parents and children s shoes, you would be horrified and terrified of the consequences of not having bandages. To prevent infection, these sufferers HAVE to have the bandages. One infection could mean death. And $800 for one dressing change? They go through a dressing change every other day. So 146,000 a year? For just a bandage?I don't know about you, but that is just outrageous and unfathomable. Unfortunately because this insurance does not cover it, many people are faced with this hefty price tag just to keep themselves or their children alive. And all while they struggle with the daily realities of living with this disease and the work and tears and pain that goes into it. Don't let these people and children suffer anymore than they absolutely have to.

]]> Sun, 11 May 2014 12:08:31 UTC 17271142 https://gopetition.com/signature/locate/17271133?utm_medium=rss Sun, 11 May 2014 12:02:24 UTC 17271133 https://gopetition.com/signature/locate/17271129?utm_medium=rss Please help with insurance payment for medical conditions, especially for children!!!!

]]> Sun, 11 May 2014 12:01:45 UTC 17271129 https://gopetition.com/signature/locate/17271124?utm_medium=rss Sun, 11 May 2014 12:00:24 UTC 17271124 https://gopetition.com/signature/locate/17271117?utm_medium=rss Sat, 10 May 2014 11:55:35 UTC 17271117 https://gopetition.com/signature/locate/17214066?utm_medium=rss Wed, 23 Apr 2014 03:06:39 UTC 17214066 https://gopetition.com/signature/locate/17204100?utm_medium=rss These children and their families NEED financial aid!!!

]]> Mon, 21 Apr 2014 06:21:40 UTC 17204100 https://gopetition.com/signature/locate/17131065?utm_medium=rss I HAVE THIS WONDERFUL STUFF UNDER MY BREASTS. I'VE HAD IT SINCE 2013(SEPTEMBER) AND THE THINGS ARE NOT CHEAP. I'M NOT AS BAT AS SOME BUT BAD IS BAD. WE NEED TO GET SOME HELP FOR THIS EB. I AM SEEING A DOCTOR FOR THIS ALSO.

]]> Tue, 1 Apr 2014 04:58:31 UTC 17131065 https://gopetition.com/signature/locate/16469301?utm_medium=rss Mon, 23 Dec 2013 09:58:29 UTC 16469301 https://gopetition.com/signature/locate/16295876?utm_medium=rss Sun, 24 Nov 2013 08:35:26 UTC 16295876 https://gopetition.com/signature/locate/16161678?utm_medium=rss Thu, 14 Nov 2013 03:09:11 UTC 16161678 https://gopetition.com/signature/locate/16075643?utm_medium=rss I have just found out about this rare disorder. In searching for information, I have found very limited information for my state. I want to know how to help a new Mom with a child that has EB but also to help support the whole family. It is hard.

]]> Wed, 30 Oct 2013 10:11:41 UTC 16075643 https://gopetition.com/signature/locate/16020197?utm_medium=rss Sat, 19 Oct 2013 09:40:59 UTC 16020197 https://gopetition.com/signature/locate/15879625?utm_medium=rss Thu, 19 Sep 2013 07:40:35 UTC 15879625 https://gopetition.com/signature/locate/15859141?utm_medium=rss Tue, 17 Sep 2013 08:09:59 UTC 15859141 https://gopetition.com/signature/locate/15858882?utm_medium=rss Tue, 17 Sep 2013 07:21:30 UTC 15858882 https://gopetition.com/signature/locate/15858764?utm_medium=rss Tue, 17 Sep 2013 07:04:41 UTC 15858764 https://gopetition.com/signature/locate/15854224?utm_medium=rss Tue, 17 Sep 2013 11:48:18 UTC 15854224 https://gopetition.com/signature/locate/15854135?utm_medium=rss Tue, 17 Sep 2013 11:39:57 UTC 15854135 https://gopetition.com/signature/locate/15740877?utm_medium=rss My whole family has EB and I know first hand just how much this would help us.

]]> Thu, 5 Sep 2013 07:01:02 UTC 15740877 https://gopetition.com/signature/locate/15690472?utm_medium=rss Fri, 23 Aug 2013 03:51:34 UTC 15690472 https://gopetition.com/signature/locate/15666093?utm_medium=rss Praying for Baby Colt is the name of the page. This is the first grandson of a very Christian family. They need all the help they can get including your prayers.

]]> Sat, 17 Aug 2013 04:54:48 UTC 15666093 https://gopetition.com/signature/locate/15640706?utm_medium=rss Children born with EB need bandaging on a daily basis , it is the only treatment ,to help them survive,EB is. The most horrible painfully unheard of disease you can be born with . I know the horrific pain of bandaging a child with EB goes thru as my Brave ,EB angel Dona Marie was born with and died from EB.PLease have a heart and educate yourself and others so children and families going thru this disease don't have the stress fear and financial ruin of not being able to bandage their child or adult with EB and sign this Petition for the wound care billfold be passed. Anne Reynolds mom to Dona Marie Reynolds RDEB

]]> Mon, 12 Aug 2013 12:31:16 UTC 15640706 https://gopetition.com/signature/locate/15640603?utm_medium=rss Sun, 11 Aug 2013 11:15:30 UTC 15640603 https://gopetition.com/signature/locate/15522945?utm_medium=rss Mon, 15 Jul 2013 07:14:42 UTC 15522945 https://gopetition.com/signature/locate/15517917?utm_medium=rss Mon, 15 Jul 2013 01:36:41 UTC 15517917 https://gopetition.com/signature/locate/15477132?utm_medium=rss Please support this bill these families need this to keep their children safe and comfortable. These bandages are not a luxury they are a necessity for a child with EB

]]> Wed, 3 Jul 2013 08:51:52 UTC 15477132 https://gopetition.com/signature/locate/15477088?utm_medium=rss Wed, 3 Jul 2013 08:24:04 UTC 15477088 https://gopetition.com/signature/locate/15477059?utm_medium=rss Wed, 3 Jul 2013 08:11:07 UTC 15477059 https://gopetition.com/signature/locate/15477042?utm_medium=rss Wed, 3 Jul 2013 07:56:24 UTC 15477042 https://gopetition.com/signature/locate/15441356?utm_medium=rss Wed, 26 Jun 2013 04:48:14 UTC 15441356 https://gopetition.com/signature/locate/15284651?utm_medium=rss Wed, 22 May 2013 02:22:02 UTC 15284651 https://gopetition.com/signature/locate/15276733?utm_medium=rss As someone with EB and a child who also has EB the financial burden of covering the medical bandaging is sometimes overwhelming. PLEASE support this bill and help those who truly need the medical support!

]]> Mon, 20 May 2013 10:16:42 UTC 15276733 https://gopetition.com/signature/locate/15260790?utm_medium=rss Thu, 16 May 2013 07:57:20 UTC 15260790 https://gopetition.com/signature/locate/15260655?utm_medium=rss Children should NEVER under any circumstances be denied ANY kind of treatment over VIAGRA and erectile dysfunction?? Are you kidding me???!!!!

]]> Thu, 16 May 2013 06:40:25 UTC 15260655 https://gopetition.com/signature/locate/15259316?utm_medium=rss Thu, 16 May 2013 11:06:58 UTC 15259316 https://gopetition.com/signature/locate/15219544?utm_medium=rss Thu, 9 May 2013 08:11:18 UTC 15219544 https://gopetition.com/signature/locate/15215355?utm_medium=rss I am suppose to be getting reimbursed for this wound care act, I almost lost my left knee area down to a very bad burn, I have no medical Insurance,and now they want to go after I worked my whole life for. My Medical bills in total are 9,768.93. Know where am I suppose to come up with that type of money,and this is not including surgery anesthesia, the room,I have to have nurses come in my home 3-4 times a day for a wound change,I can do it instead of paying over 9 grand, The IRS called me already and said there taking my hard earn tax money from me. I was so upset, I couldn't believe it,I set most of that money aside for my boys college education, and to get caught up on other bills I owe, I want my money Back this is so unfair, I wouldn't mind a payment plan, no I just receive the letter stating we will be taking out 5,475.00 I almost passed out. Something has to be done about this and where all our money is going "TO The RICH I May ADD" and people like us working a decent pay just to pay the bills and put food on the table get nothing!!! Its all being taking away from us slowly but surely

]]> Thu, 9 May 2013 01:58:14 UTC 15215355 https://gopetition.com/signature/locate/15213148?utm_medium=rss I have SEVERE 3rd degree burns in 5 different places 3 on mu left top foot, 1 on my leg, 1 on my ankle. I had to go through 2 skin graph operations thus was back in March 28,2013. I keep getting bad infections and soars all over my burn because I am not supplied with enough wound care supplies. The Pain i'm in is terrible, non stop pain,Please help people like us out. If we had the proper wound care supplies there would be a lower risk in infection, I asked my Home Service to please order me some supplies,The answer I received was our company policy only allows 1 bandage change a day. No wonder I'm getting infections.Please help-people like us out who are struggling to make ends meet,I'm a single disabled mom I have 1 child after I pay bills and rent I am left with 7.00 in my pocket Gods Honest Truth 7.00. My daughter hasn't been clothes shopping in over 3 years,Its so sad how we have to live like this in AMERICA START HELPING US OUT. I need help and if my 3rd degree burns get worse the next step is amputation,If you can just send the supplies we need it would help us out so much much. I'm really suppose to change & bath my foot 3 times a day,I do it once a Day VERY SAD..

]]> Wed, 8 May 2013 11:15:44 UTC 15213148 https://gopetition.com/signature/locate/15192138?utm_medium=rss We as Americans need to help those who can't help themselves.

]]> Tue, 7 May 2013 08:57:49 UTC 15192138 https://gopetition.com/signature/locate/15190622?utm_medium=rss Tue, 7 May 2013 11:54:27 UTC 15190622