http://gopetition.com/signatures/support-dysautonomia-awareness.html Online petition signatures en-us Fri, 3 Apr 2026 06:18 UTC GoPetition RSS Feed Generator Copyright 2026 GoPetition https://gopetition.com/signature/locate/23231539?utm_medium=rss None

]]> Wed, 4 Sep 2019 05:01:08 UTC 23231539 https://gopetition.com/signature/locate/22877186?utm_medium=rss Sat, 9 Mar 2019 04:00:39 UTC 22877186 https://gopetition.com/signature/locate/22248972?utm_medium=rss my daughter was diagnosed with Dyasutonomia at the age of 9. We have had a horrific time trying to make schools, ER rooms/hospitals, family, coworkers and friends understand Dysautonomia and the many different ways it wrecks life and changes everything.

]]> Wed, 13 Jun 2018 08:13:57 UTC 22248972 https://gopetition.com/signature/locate/21705058?utm_medium=rss I have hyper pots dysautonomia, and even well after a diagnosis, I still get yelled at and even abused in hospitals emergency rooms, and doctors, and even bullied by old friends and family because they don't think it is real. I have dangerous symptoms all the time, and to not be able to get help in any er is terrible. I have been sick for 10 years, and bed bound for 4. This needs to stop, its not a rare illness.

]]> Thu, 5 Oct 2017 10:30:21 UTC 21705058 https://gopetition.com/signature/locate/21677161?utm_medium=rss Fri, 22 Sep 2017 05:48:11 UTC 21677161 https://gopetition.com/signature/locate/21572264?utm_medium=rss Fri, 11 Aug 2017 10:01:38 UTC 21572264 https://gopetition.com/signature/locate/19971118?utm_medium=rss Fri, 6 May 2016 03:07:27 UTC 19971118 https://gopetition.com/signature/locate/19698153?utm_medium=rss There are simply not enough professionals that know about POTs it's symptoms the other complications that come with it for example there may be an underlying condition that's caused the POTS mines MELAS and it takes 6 years to get took seriously and diagnosed I had been told I was anorexic and it was all in my head my family was causing me stress the works until I got under the right people and the specialist in Pots at the QE resigned we are now under a nurse. We just need the professionals to at least be aware and take an interest when a case comes along because patients are left confused and suffering.

]]> Wed, 3 Feb 2016 06:24:17 UTC 19698153 https://gopetition.com/signature/locate/19632716?utm_medium=rss I have suffered pots for years and would of had to endure a lot less suffering had it been more known.

]]> Mon, 25 Jan 2016 05:18:19 UTC 19632716 https://gopetition.com/signature/locate/19629728?utm_medium=rss Sun, 24 Jan 2016 12:52:26 UTC 19629728 https://gopetition.com/signature/locate/19628565?utm_medium=rss Sat, 23 Jan 2016 05:38:23 UTC 19628565 https://gopetition.com/signature/locate/19628199?utm_medium=rss Sat, 23 Jan 2016 02:30:13 UTC 19628199 https://gopetition.com/signature/locate/19626448?utm_medium=rss Fri, 22 Jan 2016 09:07:07 UTC 19626448 https://gopetition.com/signature/locate/19625650?utm_medium=rss Fri, 22 Jan 2016 03:46:42 UTC 19625650 https://gopetition.com/signature/locate/19625556?utm_medium=rss Awareness needs to be raised for POTS. Too many of our doctors who look after our health know NOTHING about it. It is NOT good enough. Too many people now have POTS and too many medical professionals know NOTHING about it still.

]]> Fri, 22 Jan 2016 03:24:47 UTC 19625556 https://gopetition.com/signature/locate/19121800?utm_medium=rss Mon, 27 Jul 2015 12:31:49 UTC 19121800 https://gopetition.com/signature/locate/18636546?utm_medium=rss This disorder has crippled my entire lifestyle (or what it once was.) When you mention it to doctors, they think you're a hypochondriac. It's virtually unknown in the medical community and yet so many of us are silently suffering in turmoil. It's terrifying, confusing, intrusive, (did I say frightening?), just to mention a few. It flares up without notice, debilitates me for at least 10 days or more, and then dissipates to a point where I can go on with my life to a degree. But it's unpredictable and therefore I cannot hold a job because I don't know what the next day will bring. We sufferers need help, and sadly unless a person is also suffering from the same disorder, they don't get it. Friends and family can't quite understand, and doctors are totally in the dark about it so are unable to offer any help....in fact, they often contribute to the suffering by trying to prescribe anti anxiety/anti depression medication! Hopefully, this disorder will find someone in the medical or alternative community that cares enough to do more research and try to understand.
Thank you for listening.

]]> Mon, 9 Mar 2015 11:16:51 UTC 18636546 https://gopetition.com/signature/locate/17960976?utm_medium=rss My daugher has POTS/OI

]]> Tue, 30 Sep 2014 12:24:44 UTC 17960976 https://gopetition.com/signature/locate/17593458?utm_medium=rss Tue, 8 Jul 2014 03:54:58 UTC 17593458 https://gopetition.com/signature/locate/17593281?utm_medium=rss Tue, 8 Jul 2014 03:20:54 UTC 17593281 https://gopetition.com/signature/locate/17503687?utm_medium=rss Dustin Woods (https://www.youtube.com/watch?v=xLkqGoLDlSs) seems to be a nice enough guy to have a chance at life. Please assist as possible.

]]> Tue, 17 Jun 2014 04:03:45 UTC 17503687 https://gopetition.com/signature/locate/17189710?utm_medium=rss Thu, 17 Apr 2014 11:25:10 UTC 17189710 https://gopetition.com/signature/locate/16963840?utm_medium=rss I was ill for 6 yrs before being diagnosed w/POTS. I went through every test under the sun & was absolutely miserable! I had to quit working & became "disabled". Now that I am on meds, things are better, but my life will never be the same.

]]> Sat, 8 Mar 2014 09:02:40 UTC 16963840 https://gopetition.com/signature/locate/16516849?utm_medium=rss I think ALL of us need to do the best we can for the ones we care for and love......Godbless

]]> Sat, 4 Jan 2014 03:24:55 UTC 16516849 https://gopetition.com/signature/locate/16396458?utm_medium=rss Fri, 13 Dec 2013 01:42:43 UTC 16396458 https://gopetition.com/signature/locate/15951899?utm_medium=rss Fri, 4 Oct 2013 09:18:15 UTC 15951899 https://gopetition.com/signature/locate/15937588?utm_medium=rss Mon, 30 Sep 2013 12:36:19 UTC 15937588 https://gopetition.com/signature/locate/15490478?utm_medium=rss Here I am, laying on my cold bathroom floor at 3:30am. I had to crawl here because I am weak and cannot stand up. My body is in pain and my heart rate is in the triple digits! It hurts to fight this alone and yet I always try to be strong. I am stubborn and that has actually been a blessing. What really hurts me to this day is that some insist this is all "in my head". If they felt the way I do, they would be praying to God even if they were never a believer before! There are moments when I think "This is it! I am going to die!" Yet, everyday I wake up and say I won't let it take over me. But then there are these moments when I am laying on the cold bathroom floor, with tears in my eyes, that I realize this illness is a part of me. I just wish people would understand and the medical community would not judge me. They have no knowledge, but find it easy to ridicule and simply write off. Dysautonomia is not going away, nor will the suffering. I make peace with it everyday, but it's a battle.

]]> Mon, 8 Jul 2013 02:34:33 UTC 15490478 https://gopetition.com/signature/locate/15406164?utm_medium=rss It took 20 years and many battles for doctors to figure out what was going on with me, and they still are at a loss at how to proceed. A lot of experimentation with medications, surgeries, and sleepless nights. I have been living with this disorder for 27 years - each year becoming progressively worse, with it speeding up in the last 5 years. Instead of doctors saying they don't know what to do or there is nothing to do, how about researching so future generations don't have to suffer as those of us who have this do now? I, myself, was not appreciative of being told "there is nothing we can do and you will progressively get worse - learn to cope with it." I refuse to give up - neither should the medical community!

]]> Mon, 17 Jun 2013 07:37:53 UTC 15406164 https://gopetition.com/signature/locate/15299054?utm_medium=rss I am hoping to find a source of funds to take my daughter to Vanderbuilt University for a study on her Dysautonomia. Here we find very little in study or knowledge of the disease. Dr. Michelle Miller has been treating Lizzie, but we need more...

]]> Sat, 25 May 2013 03:24:33 UTC 15299054 https://gopetition.com/signature/locate/15152705?utm_medium=rss Tue, 30 Apr 2013 01:08:34 UTC 15152705 https://gopetition.com/signature/locate/14731483?utm_medium=rss Wed, 20 Feb 2013 08:56:31 UTC 14731483 https://gopetition.com/signature/locate/14709415?utm_medium=rss Fri, 15 Feb 2013 04:09:55 UTC 14709415 https://gopetition.com/signature/locate/13971299?utm_medium=rss Sat, 20 Oct 2012 11:58:07 UTC 13971299 https://gopetition.com/signature/locate/13945708?utm_medium=rss Mon, 15 Oct 2012 10:59:19 UTC 13945708 https://gopetition.com/signature/locate/13873459?utm_medium=rss Wed, 3 Oct 2012 07:12:19 UTC 13873459 https://gopetition.com/signature/locate/13840507?utm_medium=rss I was diagnosed with POTS 3 years ago.

]]> Thu, 27 Sep 2012 10:30:43 UTC 13840507 https://gopetition.com/signature/locate/13830586?utm_medium=rss My son was 14 when he became sick- dizziness, confusion, unsteady gait, clumsiness, etc. He was one of the lucky ones. It only took 6months to finally get the real diagnosis. He is now 18 & we take everything one step at a time & HOPE!!!

]]> Tue, 25 Sep 2012 07:04:47 UTC 13830586 https://gopetition.com/signature/locate/13814676?utm_medium=rss Sun, 23 Sep 2012 01:03:51 UTC 13814676 https://gopetition.com/signature/locate/13799824?utm_medium=rss Thu, 20 Sep 2012 02:00:36 UTC 13799824 https://gopetition.com/signature/locate/13795484?utm_medium=rss Thu, 20 Sep 2012 12:04:53 UTC 13795484 https://gopetition.com/signature/locate/13786837?utm_medium=rss My beautiful granddaughter is afflicted with this insidious disease and it is so misunderstood, primarily as the result of ignorance in the public domain. More exposure and publicity is needed to raise awareness of this disease even within the medical community who should already be aware, but are equally ignorant. Hence, the misdiagnosis and maltreatment of people who are coping with dysautonomia.

]]> Tue, 18 Sep 2012 07:23:39 UTC 13786837 https://gopetition.com/signature/locate/13779073?utm_medium=rss Mon, 17 Sep 2012 09:43:20 UTC 13779073 https://gopetition.com/signature/locate/13778921?utm_medium=rss Mon, 17 Sep 2012 09:02:25 UTC 13778921 https://gopetition.com/signature/locate/13778913?utm_medium=rss Mon, 17 Sep 2012 09:01:32 UTC 13778913 https://gopetition.com/signature/locate/13778910?utm_medium=rss Mon, 17 Sep 2012 09:01:07 UTC 13778910 https://gopetition.com/signature/locate/13778905?utm_medium=rss Mon, 17 Sep 2012 09:00:24 UTC 13778905 https://gopetition.com/signature/locate/13764669?utm_medium=rss Sun, 16 Sep 2012 09:07:26 UTC 13764669 https://gopetition.com/signature/locate/13762296?utm_medium=rss Sat, 15 Sep 2012 11:44:33 UTC 13762296 https://gopetition.com/signature/locate/13760518?utm_medium=rss Sat, 15 Sep 2012 11:49:26 UTC 13760518 https://gopetition.com/signature/locate/13753566?utm_medium=rss As a young women who suffers from this condition every day, I would love to spread the word and let the world know more about this unheard of illness. We desperately need more research done so that we can gain some sense of normalcy in our lives.

]]> Thu, 13 Sep 2012 11:16:23 UTC 13753566 https://gopetition.com/signature/locate/13752870?utm_medium=rss I have been diagnosed with POTS and it is extremely frustrating to be sent from doctor to doctor and also to be looked down upon and ignored and told "well you don't look sick." I am struggling every day to stay in college and just life a semi normal life. I pray one day that we will be able to have a cure!

]]> Thu, 13 Sep 2012 07:29:12 UTC 13752870 https://gopetition.com/signature/locate/13752521?utm_medium=rss This disease needs to be addressed

]]> Thu, 13 Sep 2012 05:59:37 UTC 13752521 https://gopetition.com/signature/locate/13749346?utm_medium=rss Thu, 13 Sep 2012 08:44:22 UTC 13749346 https://gopetition.com/signature/locate/13746209?utm_medium=rss Wed, 12 Sep 2012 08:36:07 UTC 13746209 https://gopetition.com/signature/locate/13745990?utm_medium=rss Wed, 12 Sep 2012 07:48:07 UTC 13745990 https://gopetition.com/signature/locate/13745919?utm_medium=rss Wed, 12 Sep 2012 07:33:41 UTC 13745919 https://gopetition.com/signature/locate/13745859?utm_medium=rss Wed, 12 Sep 2012 07:21:30 UTC 13745859 https://gopetition.com/signature/locate/13745772?utm_medium=rss This disease needs to be addressed

]]> Wed, 12 Sep 2012 07:00:16 UTC 13745772 https://gopetition.com/signature/locate/13745724?utm_medium=rss Wed, 12 Sep 2012 06:50:24 UTC 13745724 https://gopetition.com/signature/locate/13745645?utm_medium=rss Wed, 12 Sep 2012 06:35:25 UTC 13745645 https://gopetition.com/signature/locate/13745462?utm_medium=rss Please help find a cure for the people with this horrible condition!! My friends son has this and he is missing out on so much!

]]> Wed, 12 Sep 2012 06:03:24 UTC 13745462 https://gopetition.com/signature/locate/13745419?utm_medium=rss I have two boys with Dysautonomia. One took over 2 years to diagnose.

]]> Wed, 12 Sep 2012 05:55:20 UTC 13745419 https://gopetition.com/signature/locate/13745352?utm_medium=rss Wed, 12 Sep 2012 05:41:41 UTC 13745352 https://gopetition.com/signature/locate/13745314?utm_medium=rss Wed, 12 Sep 2012 05:35:15 UTC 13745314 https://gopetition.com/signature/locate/13745275?utm_medium=rss Everyone wants answers...let's make this one easier to find!

]]> Wed, 12 Sep 2012 05:28:25 UTC 13745275 https://gopetition.com/signature/locate/13745214?utm_medium=rss Wed, 12 Sep 2012 05:16:52 UTC 13745214 https://gopetition.com/signature/locate/13744993?utm_medium=rss Wed, 12 Sep 2012 04:58:22 UTC 13744993 https://gopetition.com/signature/locate/13744974?utm_medium=rss Wed, 12 Sep 2012 04:55:01 UTC 13744974 https://gopetition.com/signature/locate/13744726?utm_medium=rss Wed, 12 Sep 2012 04:20:32 UTC 13744726 https://gopetition.com/signature/locate/13744549?utm_medium=rss Wed, 12 Sep 2012 03:55:50 UTC 13744549 https://gopetition.com/signature/locate/13744477?utm_medium=rss Postural orthostatic tachycardia syndrome

]]> Wed, 12 Sep 2012 03:46:55 UTC 13744477 https://gopetition.com/signature/locate/13744410?utm_medium=rss Wed, 12 Sep 2012 03:39:26 UTC 13744410 https://gopetition.com/signature/locate/13744372?utm_medium=rss Wed, 12 Sep 2012 03:35:59 UTC 13744372 https://gopetition.com/signature/locate/13744256?utm_medium=rss Wed, 12 Sep 2012 03:23:23 UTC 13744256 https://gopetition.com/signature/locate/13744220?utm_medium=rss Wed, 12 Sep 2012 03:20:25 UTC 13744220 https://gopetition.com/signature/locate/13744200?utm_medium=rss Wed, 12 Sep 2012 03:18:15 UTC 13744200 https://gopetition.com/signature/locate/13744184?utm_medium=rss Fighting to raise awareness for my Son who suffers from Postural Orthostatic Tachycardia Syndrome

]]> Wed, 12 Sep 2012 03:16:11 UTC 13744184 https://gopetition.com/signature/locate/13744121?utm_medium=rss Wed, 12 Sep 2012 03:09:53 UTC 13744121 https://gopetition.com/signature/locate/13744086?utm_medium=rss Please help us spread awareness of this debilitating condition.
Our son has struggled with POTS for the past 4 years. It has been most difficult finding a doctor who not only understands what POTS/Dysautonomia is but also able to treat it.
AWARENESS IS KEY

]]> Wed, 12 Sep 2012 03:05:39 UTC 13744086 https://gopetition.com/signature/locate/13743655?utm_medium=rss Wed, 12 Sep 2012 02:17:37 UTC 13743655 https://gopetition.com/signature/locate/13743481?utm_medium=rss Wed, 12 Sep 2012 01:58:19 UTC 13743481 https://gopetition.com/signature/locate/13743454?utm_medium=rss Wed, 12 Sep 2012 01:56:09 UTC 13743454 https://gopetition.com/signature/locate/13743442?utm_medium=rss Wed, 12 Sep 2012 01:54:35 UTC 13743442 https://gopetition.com/signature/locate/13743405?utm_medium=rss My child was diagnosed with Dysautonomia three years ago. It is a struggle to find resources for this illness. We need awareness and education.

]]> Wed, 12 Sep 2012 01:50:45 UTC 13743405 https://gopetition.com/signature/locate/13743294?utm_medium=rss Wed, 12 Sep 2012 01:38:03 UTC 13743294 https://gopetition.com/signature/locate/13743091?utm_medium=rss My daughter sufferes from this poorly understood disorder.

]]> Wed, 12 Sep 2012 01:11:40 UTC 13743091 https://gopetition.com/signature/locate/13743030?utm_medium=rss Wed, 12 Sep 2012 01:05:49 UTC 13743030 https://gopetition.com/signature/locate/13742814?utm_medium=rss I am suffering from the codition. Thank you for trying to make more people aware of condition.

]]> Wed, 12 Sep 2012 12:42:28 UTC 13742814 https://gopetition.com/signature/locate/13742751?utm_medium=rss Wed, 12 Sep 2012 12:36:32 UTC 13742751 https://gopetition.com/signature/locate/13742659?utm_medium=rss My daughter has dysautonomia and it has severly affected both her life and our families. No 16 year old should have to struggle the way she struggles daily.

]]> Wed, 12 Sep 2012 12:27:07 UTC 13742659 https://gopetition.com/signature/locate/13742595?utm_medium=rss Wed, 12 Sep 2012 12:20:42 UTC 13742595 https://gopetition.com/signature/locate/13742060?utm_medium=rss Wed, 12 Sep 2012 11:25:30 UTC 13742060 https://gopetition.com/signature/locate/13742038?utm_medium=rss Wed, 12 Sep 2012 11:23:12 UTC 13742038 https://gopetition.com/signature/locate/13703059?utm_medium=rss POTS is debilitating. There needs to be more awareness and research.

]]> Thu, 6 Sep 2012 11:09:53 UTC 13703059 https://gopetition.com/signature/locate/13671007?utm_medium=rss Mon, 3 Sep 2012 03:48:56 UTC 13671007 https://gopetition.com/signature/locate/13619106?utm_medium=rss I'm hoping for extensive research in the area of Dysautonomia, as well as better training for ER physicians and the medical community in general to better diagnose and care for those with this debilitating condition.

]]> Mon, 27 Aug 2012 11:08:12 UTC 13619106 https://gopetition.com/signature/locate/13593685?utm_medium=rss Thu, 23 Aug 2012 11:26:53 UTC 13593685 https://gopetition.com/signature/locate/13462468?utm_medium=rss i have dysautonomia since i was a child and i am 22 now and it took over 10 years to get a diagnosis more people need to be aware.

]]> Thu, 2 Aug 2012 01:19:32 UTC 13462468 https://gopetition.com/signature/locate/13329716?utm_medium=rss Sat, 14 Jul 2012 09:59:37 UTC 13329716