Justice for CFS/ME sufferers Petition: Signature List Feed http://gopetition.com/signatures/justice-for-cfsme-sufferers.html Online petition signatures en-us Sat, 18 Apr 2026 07:27 UTC GoPetition RSS Feed Generator Copyright 2026 GoPetition Mr Peter Healing [Signature #1648] https://gopetition.com/signature/locate/18775611?utm_medium=rss I am a sufferer and can not believe the lack of support for this debilitating condition.

]]> Sat, 18 Apr 2015 05:36:58 UTC 18775611 Mrs Mary Johnston [Signature #1647] https://gopetition.com/signature/locate/17795852?utm_medium=rss My sister has been suffering from ME for many years and the lack of action by HM Government to help people with this disease is very frustrating and demoralising. This petition was started in 2010 and seems to have ground to a halt. Hopefully, by using email, Facebook, Twitter etc, we can bring this subject to the fore again.

]]> Thu, 28 Aug 2014 04:08:23 UTC 17795852 Mr Barry Nicol [Signature #1646] https://gopetition.com/signature/locate/14851073?utm_medium=rss Fri, 8 Mar 2013 10:17:46 UTC 14851073 miss miranda hynan [Signature #1645] https://gopetition.com/signature/locate/14769740?utm_medium=rss Wed, 27 Feb 2013 07:36:00 UTC 14769740 ms Siân Cwper [Signature #1644] https://gopetition.com/signature/locate/14359466?utm_medium=rss Mon, 7 Jan 2013 09:52:48 UTC 14359466 Mr Sam Trett [Signature #1643] https://gopetition.com/signature/locate/14189001?utm_medium=rss Wed, 5 Dec 2012 05:06:37 UTC 14189001 mr mark walker [Signature #1642] https://gopetition.com/signature/locate/14119947?utm_medium=rss Fri, 23 Nov 2012 07:54:15 UTC 14119947 Mr Allan Simpson [Signature #1641] https://gopetition.com/signature/locate/14117228?utm_medium=rss Thu, 22 Nov 2012 03:21:38 UTC 14117228 Miss Anonymous [Signature #1640] https://gopetition.com/signature/locate/14115552?utm_medium=rss Thu, 22 Nov 2012 06:53:48 UTC 14115552 Mrs Philippa Cartledge-Riley [Signature #1639] https://gopetition.com/signature/locate/14115431?utm_medium=rss Thu, 22 Nov 2012 06:09:28 UTC 14115431 miss Anonymous [Signature #1638] https://gopetition.com/signature/locate/14115085?utm_medium=rss Thu, 22 Nov 2012 04:11:20 UTC 14115085 mrs Alice Marshall [Signature #1637] https://gopetition.com/signature/locate/13839359?utm_medium=rss I am a care giver to my son whose 15 and have found it difficult to help and support on his condition, now diagnosed there seems to be nothing else to be done and we are now left on our own to deal with it.

]]> Thu, 27 Sep 2012 06:23:31 UTC 13839359 mr brian calderhead [Signature #1636] https://gopetition.com/signature/locate/13635596?utm_medium=rss Wed, 29 Aug 2012 09:11:06 UTC 13635596 ms angela fitzpatrick [Signature #1635] https://gopetition.com/signature/locate/13534769?utm_medium=rss Tue, 14 Aug 2012 12:07:29 UTC 13534769 Mr Anonymous [Signature #1634] https://gopetition.com/signature/locate/13467479?utm_medium=rss Thu, 2 Aug 2012 07:48:45 UTC 13467479 mrs suzanne wood [Signature #1633] https://gopetition.com/signature/locate/13303167?utm_medium=rss Wed, 11 Jul 2012 01:29:44 UTC 13303167 miss Hayley Green [Signature #1632] https://gopetition.com/signature/locate/13301893?utm_medium=rss Wed, 11 Jul 2012 11:00:09 UTC 13301893 Mr Michael Keating [Signature #1631] https://gopetition.com/signature/locate/13199739?utm_medium=rss Wed, 27 Jun 2012 10:54:18 UTC 13199739 Mr Luke Adams [Signature #1630] https://gopetition.com/signature/locate/13089339?utm_medium=rss Thu, 14 Jun 2012 05:03:40 UTC 13089339 Mrs Sally Burch [Signature #1629] https://gopetition.com/signature/locate/13047840?utm_medium=rss Tue, 12 Jun 2012 07:05:31 UTC 13047840 mrs Debbie McRobert [Signature #1628] https://gopetition.com/signature/locate/13047797?utm_medium=rss Tue, 12 Jun 2012 07:01:56 UTC 13047797 Ms Catherine Hill [Signature #1627] https://gopetition.com/signature/locate/13047567?utm_medium=rss Tue, 12 Jun 2012 06:44:46 UTC 13047567 Mrs Anonymous [Signature #1626] https://gopetition.com/signature/locate/13047167?utm_medium=rss Tue, 12 Jun 2012 05:40:33 UTC 13047167 Mr Anonymous [Signature #1625] https://gopetition.com/signature/locate/13046856?utm_medium=rss Tue, 12 Jun 2012 04:40:53 UTC 13046856 Ms Teresa Cicuttin [Signature #1624] https://gopetition.com/signature/locate/12910477?utm_medium=rss Fri, 25 May 2012 06:59:47 UTC 12910477 Mr Ben Pickford [Signature #1623] https://gopetition.com/signature/locate/12856196?utm_medium=rss I am the partner of a long-term CFS sufferer, and as such have seen how debilitating and frustrating the condition can be, which is only worsened by the lack of understanding evident in the media, from government, and within medicine.

]]> Fri, 18 May 2012 11:08:16 UTC 12856196 Miss Aimee Stein [Signature #1622] https://gopetition.com/signature/locate/12856069?utm_medium=rss I am a sufferer of CFS and have been for 10 years. I have encountered a great deal of mistrust and lack of understanding about my illness. I am personally frustrated at having no explanation, cause or hope of cure and am desperate for more research to be done.

]]> Fri, 18 May 2012 10:48:27 UTC 12856069 ms Anonymous [Signature #1621] https://gopetition.com/signature/locate/12841581?utm_medium=rss Thu, 17 May 2012 07:01:34 UTC 12841581 Mr James Edwardson [Signature #1620] https://gopetition.com/signature/locate/12757750?utm_medium=rss Not enough is being done to help people recover from this debilitating illness!

]]> Sat, 12 May 2012 12:39:43 UTC 12757750 Mrs Anonymous [Signature #1619] https://gopetition.com/signature/locate/12710858?utm_medium=rss Tue, 8 May 2012 02:13:23 UTC 12710858 Mr Mark Walker [Signature #1618] https://gopetition.com/signature/locate/12710817?utm_medium=rss Tue, 8 May 2012 02:09:26 UTC 12710817 ms louise mayo [Signature #1617] https://gopetition.com/signature/locate/12430279?utm_medium=rss Iv only been diagnosed for 5 months ppl need to know more about CFS/ME dont be blinkered its not in our heads

]]> Fri, 23 Mar 2012 04:27:23 UTC 12430279 Mr Abdulkadir Vankalwala [Signature #1616] https://gopetition.com/signature/locate/12381546?utm_medium=rss Thu, 15 Mar 2012 02:53:06 UTC 12381546 mrs yvonne fellowes [Signature #1615] https://gopetition.com/signature/locate/12318961?utm_medium=rss Mon, 5 Mar 2012 12:54:58 UTC 12318961 Mr Damien Anderson [Signature #1614] https://gopetition.com/signature/locate/12318746?utm_medium=rss I suffered CFS, luckily I have managed to recover, but I had no support from the government or NHS to get there. I was told I had it and that was it, nothing else. Dont let this carry on.

]]> Mon, 5 Mar 2012 12:12:25 UTC 12318746 mrs D McRobert [Signature #1613] https://gopetition.com/signature/locate/12318327?utm_medium=rss Mon, 5 Mar 2012 10:30:26 UTC 12318327 Miss Mikaela Male [Signature #1612] https://gopetition.com/signature/locate/12317492?utm_medium=rss Mon, 5 Mar 2012 07:22:03 UTC 12317492 Ms Elspeth Nicol [Signature #1611] https://gopetition.com/signature/locate/12315988?utm_medium=rss Mon, 5 Mar 2012 02:24:17 UTC 12315988 mr roger manvell [Signature #1610] https://gopetition.com/signature/locate/12247613?utm_medium=rss Wed, 22 Feb 2012 04:48:51 UTC 12247613 MS Clara Lopez [Signature #1609] https://gopetition.com/signature/locate/12214200?utm_medium=rss Thu, 16 Feb 2012 11:54:13 UTC 12214200 Miss Kate Williamson [Signature #1608] https://gopetition.com/signature/locate/12206985?utm_medium=rss Wed, 15 Feb 2012 10:13:52 UTC 12206985 Ms GRACIELA MCINTYRE [Signature #1607] https://gopetition.com/signature/locate/12198619?utm_medium=rss Mon, 13 Feb 2012 02:52:11 UTC 12198619 MRS RUTH TATE [Signature #1606] https://gopetition.com/signature/locate/12148520?utm_medium=rss Sun, 5 Feb 2012 11:33:31 UTC 12148520 miss sarah hunter [Signature #1605] https://gopetition.com/signature/locate/12073039?utm_medium=rss This illness needs a lot more research and understanding, it is not a easy illness to suffer from and is very dibilitating. Non suffers can not see how we feel so think nothing is wrong which makes sufferes feel like a fake. People think it is all about fatigue but that is just one symptom, a lot more needs done to understand m.e/cfs.

]]> Tue, 24 Jan 2012 05:52:43 UTC 12073039 Ms Suzannah Osborne [Signature #1604] https://gopetition.com/signature/locate/12021988?utm_medium=rss Wed, 18 Jan 2012 02:46:21 UTC 12021988 ms beverley jones [Signature #1603] https://gopetition.com/signature/locate/11922423?utm_medium=rss Sun, 1 Jan 2012 07:14:10 UTC 11922423 Miss Jade Taylor [Signature #1602] https://gopetition.com/signature/locate/11749676?utm_medium=rss Mon, 28 Nov 2011 03:41:03 UTC 11749676 ms Lisa oakley [Signature #1601] https://gopetition.com/signature/locate/11749190?utm_medium=rss I have had CFS for nearly 2 years but looking back I can see I had problems since childhood. Better medical knowledge may have stopped the chronic onset of my condition. I have had to fight for any help or benefits even though I am now disabled. The benefits system does not work for CFS sufferers and many have a substandard living situation due to this.

]]> Mon, 28 Nov 2011 02:38:27 UTC 11749190 mr Gorman Stewart [Signature #1600] https://gopetition.com/signature/locate/11737409?utm_medium=rss Our Govt, seriously needs to get its head out of the last century and REALLY LOOK at this Debilitating Illness, and FUND IT Correctly, and those that SUFFER on a daily basis ,
Instead of giving money away to shirkers/people that really DO NOT have anything physically ill with them,
Why REAL suffering M/E people have been ignored for SO LONG is beyond me, but then again , Im only a Tax payer, and guess , will be ignored
LIKE MOST DECENT HONEST PEOPLE

]]> Sat, 26 Nov 2011 10:01:50 UTC 11737409 Mr Anonymous [Signature #1599] https://gopetition.com/signature/locate/11713786?utm_medium=rss Tue, 22 Nov 2011 06:12:09 UTC 11713786 Mrs Moira Dunbar-Philip [Signature #1598] https://gopetition.com/signature/locate/11517343?utm_medium=rss Tue, 15 Nov 2011 07:00:24 UTC 11517343 mr roy waddington [Signature #1597] https://gopetition.com/signature/locate/11489235?utm_medium=rss Thu, 10 Nov 2011 02:38:14 UTC 11489235 Mr Michael McCarthy [Signature #1596] https://gopetition.com/signature/locate/11487577?utm_medium=rss Totally agree something must be done by the government to take serious this debilitating illness

]]> Wed, 9 Nov 2011 06:37:40 UTC 11487577 Ms Suzie Saw [Signature #1595] https://gopetition.com/signature/locate/11414185?utm_medium=rss May I also refer you to this very recent Norwegian study http://bit.ly/vuvODO demonstrating significant recovery in 67% of ME patients treated with the autoimmune drug Rituximab, suggesting that ME is indeed a physical autoimmune disorder.

This has prompted the Norwegian govt to issue a public apology for its poor treatment of ME patients http://bit.ly/svyORT...

...& a UK petition requesting the same of our govt http://bit.ly/vrUzs3.

]]> Fri, 28 Oct 2011 09:17:16 UTC 11414185 Mr James Backhouse [Signature #1594] https://gopetition.com/signature/locate/11406654?utm_medium=rss Wed, 26 Oct 2011 10:21:18 UTC 11406654 Mr David Reid [Signature #1593] https://gopetition.com/signature/locate/11405342?utm_medium=rss The government needs to wake up and start recognising CFS as a serious debilitating illness and should offer more help to those effected.

]]> Wed, 26 Oct 2011 04:07:32 UTC 11405342 Mrs Kirsty Turner [Signature #1592] https://gopetition.com/signature/locate/11401839?utm_medium=rss We need more positive help & guidance... NOW!

]]> Wed, 26 Oct 2011 02:53:24 UTC 11401839 mr ANDY CANNELL [Signature #1591] https://gopetition.com/signature/locate/11400465?utm_medium=rss GET YOUR FINGER OUT AND DO SOMETHING ABOUT THIS TERRIBLE ILLNESS. IF WE WERE HASH HEADS AND WINOS SOMETHING WOULD BE DONE

]]> Tue, 25 Oct 2011 05:26:39 UTC 11400465 Mrs Tracey Siddall [Signature #1590] https://gopetition.com/signature/locate/11400406?utm_medium=rss Tue, 25 Oct 2011 05:13:46 UTC 11400406 MRS Anonymous [Signature #1589] https://gopetition.com/signature/locate/11305584?utm_medium=rss Thu, 13 Oct 2011 08:23:04 UTC 11305584 miss Anonymous [Signature #1588] https://gopetition.com/signature/locate/11305570?utm_medium=rss Thu, 13 Oct 2011 08:22:09 UTC 11305570 Ms Kyong Won Lee [Signature #1587] https://gopetition.com/signature/locate/11244923?utm_medium=rss I'm also a CFS patient. I really wish government be aware of seriousness of CFS/ME.

]]> Sun, 2 Oct 2011 08:38:59 UTC 11244923 Mrs Anonymous [Signature #1586] https://gopetition.com/signature/locate/11145555?utm_medium=rss Sun, 11 Sep 2011 09:47:40 UTC 11145555 Mrs Yvonne Morley [Signature #1585] https://gopetition.com/signature/locate/11113622?utm_medium=rss Sat, 3 Sep 2011 07:23:36 UTC 11113622 Ms Maureen Fox [Signature #1584] https://gopetition.com/signature/locate/11112954?utm_medium=rss I developed CFS around seven years ago, and fortunately, having found a doctor (outside the NHS) who diagnosed it and sent me to Dr John McLaren Howard, who is doing wonderful research into the diagnosis of CFS, my condition has improved remarkably. I still have to be careful - but I have my life back. Fortunately I could afford this - but not everyone is in my position. The NHS MUST start to take this seriously - it can be improved - with more resources.

]]> Sat, 3 Sep 2011 02:46:07 UTC 11112954 Mrs Glennis Wood [Signature #1583] https://gopetition.com/signature/locate/11112871?utm_medium=rss Sat, 3 Sep 2011 02:13:56 UTC 11112871 Ms Jacqueline Brown [Signature #1582] https://gopetition.com/signature/locate/11112833?utm_medium=rss I have suffered from CFS for many years and am very concerned by the lack of support and understanding.

]]> Sat, 3 Sep 2011 01:56:17 UTC 11112833 Mrs Jenny Billings [Signature #1581] https://gopetition.com/signature/locate/11112783?utm_medium=rss An excellent petition idea, good luck!!!

]]> Sat, 3 Sep 2011 01:32:56 UTC 11112783 Mr Alexander Awdry [Signature #1580] https://gopetition.com/signature/locate/11063881?utm_medium=rss Thu, 25 Aug 2011 04:35:12 UTC 11063881 Miss Emily Hoffmeister [Signature #1579] https://gopetition.com/signature/locate/11062988?utm_medium=rss Thu, 25 Aug 2011 12:50:56 UTC 11062988 mr thomas egan [Signature #1578] https://gopetition.com/signature/locate/11062644?utm_medium=rss had "cfs" for about 3years now, never had any real help from doctors apart from you have fatigue! have a blood test! would you like some antidepressents?.. no.. im not depressed!, would you like a placebo? how much will it cost? 9quid a month.. hmm no thanks

]]> Thu, 25 Aug 2011 11:17:04 UTC 11062644 Mr James Aitchison [Signature #1577] https://gopetition.com/signature/locate/11060104?utm_medium=rss Wed, 24 Aug 2011 05:53:40 UTC 11060104 Mr, Robert Halden [Signature #1576] https://gopetition.com/signature/locate/11044671?utm_medium=rss Sun, 21 Aug 2011 04:33:41 UTC 11044671 Miss Ashleigh Greenan [Signature #1575] https://gopetition.com/signature/locate/11020638?utm_medium=rss More research needs to go into this condition as it is ultimately extremely life altering and affects everyone within the family. I hope this petition gets somewhere important and we see changes!

]]> Wed, 17 Aug 2011 01:02:13 UTC 11020638 Mr Chris Muscatelli [Signature #1574] https://gopetition.com/signature/locate/11009419?utm_medium=rss Tue, 16 Aug 2011 06:28:25 UTC 11009419 mrs estelle holliday [Signature #1573] https://gopetition.com/signature/locate/10997134?utm_medium=rss Sun, 14 Aug 2011 04:04:17 UTC 10997134 Ms Ditha Borg [Signature #1572] https://gopetition.com/signature/locate/10996431?utm_medium=rss Sun, 14 Aug 2011 02:36:55 UTC 10996431 mr phillip gill [Signature #1571] https://gopetition.com/signature/locate/10937630?utm_medium=rss ME/CFS is an awful debillitating illness ,which needs proper research, for hopeful eventual cure. The majority of sufferers were hard working concientious people ,who want to become well again to enjoy life again and contribute to society (work - pay taxes etc.).

]]> Mon, 1 Aug 2011 04:01:41 UTC 10937630 Ms Wanda Lozinska [Signature #1570] https://gopetition.com/signature/locate/10883721?utm_medium=rss The NHS does not want to help us and DWP does not want to pay benefits so keep harassing us which causes so much stress that it makes our condition worse and diminishes our chances of recovery. I find myself in an impossible situation as the benefits I get are not enough to live on long-term. If the NHS took this seriously we would have a better chance of recovery. Why can Valcyte be given to HIV patients but not to CFS/ME sufferers who have HHV-6? In the USA people are being cured with this

]]> Wed, 20 Jul 2011 09:01:31 UTC 10883721 Mrs Dawn Sewell [Signature #1569] https://gopetition.com/signature/locate/10878541?utm_medium=rss Tue, 19 Jul 2011 04:28:51 UTC 10878541 Mrs Marie Barnfield [Signature #1568] https://gopetition.com/signature/locate/10872011?utm_medium=rss I have been ill and suffering for 16 years, and have not been able to find an NHS doctor who has actually read any of the international scientific studies of ME (as opposed to psychiatric studies of tired people), nor who is prepared to even test for the abnormalities associated with ME - only ever-repeated tests for other conditions that I have demonstrated over and over again I do not have.
This is a waste of public money, as is my inability to work. Please, something needs to be done

]]> Mon, 18 Jul 2011 02:02:52 UTC 10872011 MR Anonymous [Signature #1567] https://gopetition.com/signature/locate/10870958?utm_medium=rss I have suffered from ME/CFS for 6 years after a an 8 week acute flu virus attack. I am mainly housebound and desperate for some real organic scientific conclusions. Then some real medicines can be made available.

]]> Mon, 18 Jul 2011 10:31:11 UTC 10870958 MR P. Sheer. [Signature #1566] https://gopetition.com/signature/locate/10870891?utm_medium=rss I have suffered from ME/CFS for 6 years after a an 8 week acute flu virus attack. I am mainly housebound and desperate for some real organic scientific conclusions. Then some real medicines can be made available.

]]> Mon, 18 Jul 2011 10:17:14 UTC 10870891 Mrs Lesley McLeod [Signature #1565] https://gopetition.com/signature/locate/10868112?utm_medium=rss CFS has a very strong Physical Biological Portfolio that is currently being swept aside. Inside this immense reservoir of Scientific Research Data are the methods & means in which to address the increasing pain and degenerative disease processes of CFS.
CBT & GET as Rehabilitative Processes should follow - and Not precede Treatments to address CFS's disease portfolios . It is time to translate the collective Scientific data on CFS and produce the first Approved Drug to Treat CFS .. Ampligen

]]> Sun, 17 Jul 2011 09:15:02 UTC 10868112 Mrs Heather Goodwin [Signature #1564] https://gopetition.com/signature/locate/10861797?utm_medium=rss Sat, 16 Jul 2011 11:32:47 UTC 10861797 Miss carmel hillary [Signature #1563] https://gopetition.com/signature/locate/10861547?utm_medium=rss Sat, 16 Jul 2011 09:59:20 UTC 10861547 Mrs Kitty Lobert [Signature #1562] https://gopetition.com/signature/locate/10851351?utm_medium=rss Wed, 13 Jul 2011 11:40:35 UTC 10851351 Ms Jayne Eldred [Signature #1561] https://gopetition.com/signature/locate/10850719?utm_medium=rss Time to start taking this devastating illness seriously and treating patients with respect, care, compassion and giving them validity. So many people are suffering this illness in silence, and often with no medical support - because there are so few people who seriously investigate this illness and understand it's massive impact on a person's life (and their family).

]]> Wed, 13 Jul 2011 06:43:27 UTC 10850719 Mrs. Anonymous [Signature #1560] https://gopetition.com/signature/locate/10843933?utm_medium=rss Tue, 12 Jul 2011 12:02:09 UTC 10843933 Ms Anonymous [Signature #1559] https://gopetition.com/signature/locate/10833426?utm_medium=rss We are losing so much money in this country from people suffering from this condition and no one gives a damn, no one researches it, doctors don't even apply an enqurying mind to it. I hope none of you ever get it, it's horrible!

]]> Sun, 10 Jul 2011 12:20:25 UTC 10833426 mr Andy Bettens [Signature #1558] https://gopetition.com/signature/locate/10815469?utm_medium=rss Wed, 6 Jul 2011 05:56:40 UTC 10815469 Mrs Elizabeth Adams [Signature #1557] https://gopetition.com/signature/locate/10814961?utm_medium=rss Wed, 6 Jul 2011 04:35:46 UTC 10814961 Miss Sarah Mitchell [Signature #1556] https://gopetition.com/signature/locate/10810942?utm_medium=rss Wed, 6 Jul 2011 04:54:50 UTC 10810942 ms marianne celia crosby [Signature #1555] https://gopetition.com/signature/locate/10810874?utm_medium=rss I have suffered from ME for over 17 years with various relapses and remissions. I have found it extremely difficult to have my illness understood by both healthcare and benefits. Not to mention the general lack of public knowledge that makes sufferes of this illness very frustrated and depressed as people appear to have a view that the illness isnt real.

]]> Wed, 6 Jul 2011 04:33:51 UTC 10810874 mrs catherine clapton [Signature #1554] https://gopetition.com/signature/locate/10807065?utm_medium=rss My 19yr old daughter has had CFS for 4 yrs, diagnosed after 2 yrs. Has not had any success with treatment and I have seen all her hopes and dreams go one by one. Please help by putting funding in place to find a cure.

]]> Tue, 5 Jul 2011 05:39:22 UTC 10807065 Mrs Alexandra Hall [Signature #1553] https://gopetition.com/signature/locate/10804738?utm_medium=rss Mon, 4 Jul 2011 02:16:49 UTC 10804738 Miss Carol Venables [Signature #1552] https://gopetition.com/signature/locate/10803744?utm_medium=rss Mon, 4 Jul 2011 09:33:29 UTC 10803744 Ms. Susan Lucey [Signature #1551] https://gopetition.com/signature/locate/10737366?utm_medium=rss This is a catastrophic disease. I've been ill 22 yrs and I am not 59. I loss my prime years languishing in bed with severe ME/CFS. Ask my husband who has taken care of me all this time.

]]> Thu, 23 Jun 2011 07:47:52 UTC 10737366 ms willy smit [Signature #1550] https://gopetition.com/signature/locate/10669316?utm_medium=rss Mon, 13 Jun 2011 08:00:26 UTC 10669316 mrs cathy lyons [Signature #1549] https://gopetition.com/signature/locate/10619424?utm_medium=rss Sat, 4 Jun 2011 05:48:34 UTC 10619424