Join the Fight Against PNH Petition: Signature List Feed http://gopetition.com/signatures/join-the-fight-against-pnh.html Online petition signatures en-us Sat, 18 Apr 2026 12:24 UTC GoPetition RSS Feed Generator Copyright 2026 GoPetition Mr Chris Cherrington [Signature #1529] https://gopetition.com/signature/locate/17293989?utm_medium=rss My wife has recently been diagnosed with this disease so I am now familiar with Soliris and the benefits it provides. As we live in the UK we are lucky enough to get the drug on the health service. I think its terrible that this drug is not funded in a country with the wealth of Canada. There are currently pressure groups in the UK to push for this drug to be funded in Scotland, the only place in the UK where it is not currently funded.

]]> Wed, 14 May 2014 02:56:05 UTC 17293989 Mrs Deanne Cherrington [Signature #1528] https://gopetition.com/signature/locate/17072783?utm_medium=rss Sat, 22 Mar 2014 08:30:21 UTC 17072783 mr Antonio Joge [Signature #1527] https://gopetition.com/signature/locate/16924976?utm_medium=rss Need this in South Africa, we are not 3rd world, people will die without it

]]> Sun, 2 Mar 2014 12:31:32 UTC 16924976 Caitlin Omalley [Signature #1526] https://gopetition.com/signature/locate/16904074?utm_medium=rss Wed, 26 Feb 2014 01:19:34 UTC 16904074 Mrs Leah Peckler [Signature #1525] https://gopetition.com/signature/locate/16891073?utm_medium=rss Mon, 24 Feb 2014 01:40:58 UTC 16891073 Megan Curtis [Signature #1524] https://gopetition.com/signature/locate/16853723?utm_medium=rss Wed, 19 Feb 2014 06:14:41 UTC 16853723 Maya Lubin [Signature #1523] https://gopetition.com/signature/locate/16852867?utm_medium=rss Wed, 19 Feb 2014 04:09:57 UTC 16852867 Allison Mirek [Signature #1522] https://gopetition.com/signature/locate/16851302?utm_medium=rss Wed, 19 Feb 2014 12:24:38 UTC 16851302 ms shelly rice [Signature #1521] https://gopetition.com/signature/locate/16851253?utm_medium=rss that is ridicules

]]> Wed, 19 Feb 2014 12:15:08 UTC 16851253 Denise Lukse [Signature #1520] https://gopetition.com/signature/locate/16850551?utm_medium=rss Wed, 19 Feb 2014 10:20:02 UTC 16850551 Charlin Burdick [Signature #1519] https://gopetition.com/signature/locate/16850282?utm_medium=rss My best friend has PNH. This is a rare but fatal disease and there is only one treatment on the market, denial to treat such patients when there is an available means of medicine is inhumane. I hope this bill passes!

]]> Wed, 19 Feb 2014 09:49:07 UTC 16850282 Alesha Wilson [Signature #1518] https://gopetition.com/signature/locate/16850245?utm_medium=rss Wed, 19 Feb 2014 09:42:32 UTC 16850245 Wallace Ashby ii [Signature #1517] https://gopetition.com/signature/locate/16847511?utm_medium=rss Wed, 19 Feb 2014 01:24:46 UTC 16847511 Thurman Holder [Signature #1516] https://gopetition.com/signature/locate/16847398?utm_medium=rss Wed, 19 Feb 2014 12:41:38 UTC 16847398 Brianne Mettler [Signature #1515] https://gopetition.com/signature/locate/16847337?utm_medium=rss Wed, 19 Feb 2014 12:19:49 UTC 16847337 ms Ericka Dellinger [Signature #1514] https://gopetition.com/signature/locate/16847280?utm_medium=rss Wed, 19 Feb 2014 12:01:00 UTC 16847280 Ms Alison OMalley [Signature #1513] https://gopetition.com/signature/locate/16847279?utm_medium=rss Wed, 19 Feb 2014 12:00:23 UTC 16847279 Donna Bergh [Signature #1512] https://gopetition.com/signature/locate/16847273?utm_medium=rss Tue, 18 Feb 2014 11:58:56 UTC 16847273 Lu Harris [Signature #1511] https://gopetition.com/signature/locate/16847225?utm_medium=rss Tue, 18 Feb 2014 11:44:16 UTC 16847225 Mr. Daniel Duvall [Signature #1510] https://gopetition.com/signature/locate/16847214?utm_medium=rss Tue, 18 Feb 2014 11:38:43 UTC 16847214 Ms Lily Perkin [Signature #1509] https://gopetition.com/signature/locate/16847190?utm_medium=rss It should be a crime to deny medication that can save peoples lives. There is no other treatment for this disease.

]]> Tue, 18 Feb 2014 11:28:34 UTC 16847190 Ms. Karen Riegler [Signature #1508] https://gopetition.com/signature/locate/15039574?utm_medium=rss Wed, 10 Apr 2013 08:18:28 UTC 15039574 Mrs. Renate Gryba [Signature #1507] https://gopetition.com/signature/locate/14799627?utm_medium=rss Since my husband has PNH, I totally support this petition. Good luck to all patients suffering from this disease!

]]> Sat, 2 Mar 2013 06:11:11 UTC 14799627 Ms Julie Raymond [Signature #1506] https://gopetition.com/signature/locate/14227520?utm_medium=rss Tue, 11 Dec 2012 08:00:33 UTC 14227520 ms sheila tangney [Signature #1505] https://gopetition.com/signature/locate/13495964?utm_medium=rss Tue, 7 Aug 2012 02:38:59 UTC 13495964 Ms Carole Bérubé [Signature #1504] https://gopetition.com/signature/locate/12527774?utm_medium=rss Mon, 9 Apr 2012 01:16:56 UTC 12527774 Ms Sarindar PattersonBoxem [Signature #1503] https://gopetition.com/signature/locate/12104324?utm_medium=rss Immediate action on availability for treatment for P.N.H. to recipient is of untmost important. (Any decease, for that matter. This is an issue with medications which offer hope). The emotional turmoil the ailing patient is going thru is unbelievable. The bureaucrats have to realize that cost should not be a barrier. How would they feel if they were suddenly in a situation that is life threatening.

]]> Sat, 28 Jan 2012 02:17:34 UTC 12104324 mme Linda Blais [Signature #1502] https://gopetition.com/signature/locate/11990854?utm_medium=rss Je commence la traitement soliris bientot et je sais que ca va changer de beaucoup ma qualite de vie . mes assurances a mon conjoint ont decide de couvrir les frais . mais TOUT LE MONDE atteint de cette maladie devraient y avoir droit

]]> Fri, 13 Jan 2012 06:08:00 UTC 11990854 Jessica Pena [Signature #1501] https://gopetition.com/signature/locate/11198290?utm_medium=rss Wed, 21 Sep 2011 07:44:02 UTC 11198290 Ms Christine Garand [Signature #1500] https://gopetition.com/signature/locate/10949810?utm_medium=rss Thu, 4 Aug 2011 05:23:27 UTC 10949810 Mr Christian Truchon [Signature #1499] https://gopetition.com/signature/locate/10943819?utm_medium=rss Tue, 2 Aug 2011 09:01:33 UTC 10943819 Frederiquei Izaute [Signature #1498] https://gopetition.com/signature/locate/10941199?utm_medium=rss Tue, 2 Aug 2011 09:32:50 UTC 10941199 Francois Geoffroy [Signature #1497] https://gopetition.com/signature/locate/10941064?utm_medium=rss Tue, 2 Aug 2011 08:55:32 UTC 10941064 Mr Philippe Bauer [Signature #1496] https://gopetition.com/signature/locate/10941049?utm_medium=rss As a tax payer, once in while, I will appreciate and I will not mind that the money we give to the goverment is used to save lifes!

]]> Tue, 2 Aug 2011 08:52:31 UTC 10941049 Mr Graham Ballard [Signature #1495] https://gopetition.com/signature/locate/10893169?utm_medium=rss Go Canada, do the right thing.

]]> Fri, 22 Jul 2011 03:54:16 UTC 10893169 mrs Rebeca Tanner [Signature #1494] https://gopetition.com/signature/locate/10814440?utm_medium=rss My uncle had this sickness and if he were still here we would make sure he got where ever the medicine was so he could get better but where it is too late for him if you could pass this it would help some other family not go thru the heart ach we all went thru.

thanks

]]> Wed, 6 Jul 2011 03:24:45 UTC 10814440 Holly Thornton [Signature #1493] https://gopetition.com/signature/locate/10812992?utm_medium=rss My dad died in 1997 from complications of PNH...this medication didnt exist then, but oh how I wish it would have. I pray noone else looses their dad to this awful disease!

]]> Wed, 6 Jul 2011 12:19:21 UTC 10812992 Ms sharon peterson [Signature #1492] https://gopetition.com/signature/locate/10769142?utm_medium=rss Tue, 28 Jun 2011 05:54:13 UTC 10769142 mr joseph miranda [Signature #1491] https://gopetition.com/signature/locate/10766365?utm_medium=rss Tue, 28 Jun 2011 09:25:47 UTC 10766365 Ms Marina Anfuso [Signature #1490] https://gopetition.com/signature/locate/10642660?utm_medium=rss Wed, 8 Jun 2011 11:42:31 UTC 10642660 Pingki Mazumder [Signature #1489] https://gopetition.com/signature/locate/10619377?utm_medium=rss Sat, 4 Jun 2011 05:32:52 UTC 10619377 Ms Helen Kiperchuk [Signature #1488] https://gopetition.com/signature/locate/10618474?utm_medium=rss Sat, 4 Jun 2011 01:10:49 UTC 10618474 Ledja Rasul [Signature #1487] https://gopetition.com/signature/locate/10615389?utm_medium=rss Fri, 3 Jun 2011 10:25:00 UTC 10615389 Tasfia Syeda [Signature #1486] https://gopetition.com/signature/locate/10615338?utm_medium=rss My mother has PNH, I am fighting for her.

]]> Fri, 3 Jun 2011 09:58:08 UTC 10615338 Mrs Kristina Johnson [Signature #1485] https://gopetition.com/signature/locate/10613883?utm_medium=rss I personally know someone who has the benefit of this drug through extend health benefits. It has changed his life and the lives of his family because they have their husband and father back. Everybody with this condition should have the same opportunity to lead a normal life. Most of us are lucky to not have to deal with something like this. Imagine what it would be like to know that there is something available to help you live & the only thing standing in the way is the money to do it.

]]> Fri, 3 Jun 2011 03:12:48 UTC 10613883 Mrs. Sheila Marshall [Signature #1484] https://gopetition.com/signature/locate/10592084?utm_medium=rss Tue, 31 May 2011 08:59:27 UTC 10592084 mr james thomson [Signature #1483] https://gopetition.com/signature/locate/10582010?utm_medium=rss cover the drug that is needed for these people,it works . i will gladly put some of my tax towards this

]]> Mon, 30 May 2011 07:43:55 UTC 10582010 Anonymous [Signature #1482] https://gopetition.com/signature/locate/10580714?utm_medium=rss Mon, 30 May 2011 03:27:40 UTC 10580714 Kristen Ferma [Signature #1481] https://gopetition.com/signature/locate/10568401?utm_medium=rss Sat, 28 May 2011 10:21:31 UTC 10568401 Ms Anonymous [Signature #1480] https://gopetition.com/signature/locate/10565317?utm_medium=rss Sat, 28 May 2011 09:57:30 UTC 10565317 Mr Derek Atchison [Signature #1479] https://gopetition.com/signature/locate/10562052?utm_medium=rss Fri, 27 May 2011 05:25:58 UTC 10562052 Mrs Rosemary Pauer [Signature #1478] https://gopetition.com/signature/locate/10558149?utm_medium=rss Fri, 27 May 2011 07:02:27 UTC 10558149 Ms. Paulina Cichon [Signature #1477] https://gopetition.com/signature/locate/10554477?utm_medium=rss Thu, 26 May 2011 05:47:03 UTC 10554477 Tomas Zunino [Signature #1476] https://gopetition.com/signature/locate/10554390?utm_medium=rss Thu, 26 May 2011 05:35:53 UTC 10554390 Ms Kimberly Fraatz [Signature #1475] https://gopetition.com/signature/locate/10554060?utm_medium=rss Thu, 26 May 2011 04:52:37 UTC 10554060 ms Terry Pickard [Signature #1474] https://gopetition.com/signature/locate/10553306?utm_medium=rss Thu, 26 May 2011 03:21:45 UTC 10553306 Karlee Adamarczuk [Signature #1473] https://gopetition.com/signature/locate/10552529?utm_medium=rss Thu, 26 May 2011 01:44:20 UTC 10552529 mrs Maiah Mckearney [Signature #1472] https://gopetition.com/signature/locate/10550973?utm_medium=rss Thu, 26 May 2011 10:15:11 UTC 10550973 Dr Thomas Szuk [Signature #1471] https://gopetition.com/signature/locate/10548266?utm_medium=rss Thu, 26 May 2011 03:25:37 UTC 10548266 Andrew Pickard [Signature #1470] https://gopetition.com/signature/locate/10547368?utm_medium=rss Thu, 26 May 2011 12:08:07 UTC 10547368 peter konopka [Signature #1469] https://gopetition.com/signature/locate/10545960?utm_medium=rss Wed, 25 May 2011 06:33:31 UTC 10545960 Ms Liana McCartney [Signature #1468] https://gopetition.com/signature/locate/10544740?utm_medium=rss Wed, 25 May 2011 03:21:32 UTC 10544740 Mr Ken Wu [Signature #1467] https://gopetition.com/signature/locate/10539585?utm_medium=rss Wed, 25 May 2011 01:21:47 UTC 10539585 ms amanda haines [Signature #1466] https://gopetition.com/signature/locate/10538580?utm_medium=rss Tue, 24 May 2011 09:07:58 UTC 10538580 Mrs. Corinne Volpatti [Signature #1465] https://gopetition.com/signature/locate/10537947?utm_medium=rss Tue, 24 May 2011 06:34:49 UTC 10537947 Ms. Sarah Volpatti [Signature #1464] https://gopetition.com/signature/locate/10537943?utm_medium=rss Tue, 24 May 2011 06:33:31 UTC 10537943 Anonymous [Signature #1463] https://gopetition.com/signature/locate/10537235?utm_medium=rss Tue, 24 May 2011 04:19:47 UTC 10537235 Ms. Kristi Turner [Signature #1462] https://gopetition.com/signature/locate/10537221?utm_medium=rss It's a crime that people with this disease are being denied the proper treatment. Our government has the opportunity to save lives through funding this drug...It's disgusting that this is even an issue.

]]> Tue, 24 May 2011 04:17:24 UTC 10537221 Mr Anonymous [Signature #1461] https://gopetition.com/signature/locate/10537111?utm_medium=rss One of my good friends could die without this treatment, and knowing that there is a way for him to be treated but cannot afford it is absolutely stunning. It angers me that the government has not stepped up, and I hope this petition opens some eyes and hearts.

]]> Tue, 24 May 2011 03:57:27 UTC 10537111 Dr Faron Bainbridge [Signature #1460] https://gopetition.com/signature/locate/10537072?utm_medium=rss Tue, 24 May 2011 03:48:41 UTC 10537072 Hope Peden [Signature #1459] https://gopetition.com/signature/locate/10527329?utm_medium=rss Mon, 23 May 2011 10:34:18 UTC 10527329 Krystyna Bielecka [Signature #1458] https://gopetition.com/signature/locate/10525633?utm_medium=rss Mon, 23 May 2011 07:19:16 UTC 10525633 Ms Patti Sunder [Signature #1457] https://gopetition.com/signature/locate/10505043?utm_medium=rss Fri, 20 May 2011 08:30:54 UTC 10505043 patricia robson [Signature #1456] https://gopetition.com/signature/locate/10497450?utm_medium=rss Thu, 19 May 2011 07:21:55 UTC 10497450 Nicola Killeen [Signature #1455] https://gopetition.com/signature/locate/10496864?utm_medium=rss Thu, 19 May 2011 04:55:07 UTC 10496864 Miss Anonymous [Signature #1454] https://gopetition.com/signature/locate/10491080?utm_medium=rss Thu, 19 May 2011 12:25:04 UTC 10491080 Rita Johnson [Signature #1453] https://gopetition.com/signature/locate/10487897?utm_medium=rss Please approve funding for Soliris so that those with PHN can live!

]]> Wed, 18 May 2011 12:19:54 UTC 10487897 Mrs. Anonymous [Signature #1452] https://gopetition.com/signature/locate/10483768?utm_medium=rss Tue, 17 May 2011 11:43:21 UTC 10483768 Kaori Takahashi [Signature #1451] https://gopetition.com/signature/locate/10483564?utm_medium=rss Tue, 17 May 2011 10:21:36 UTC 10483564 Ms. Alexis Neufeld [Signature #1450] https://gopetition.com/signature/locate/10480527?utm_medium=rss Tue, 17 May 2011 01:37:07 UTC 10480527 Mr Anonymous [Signature #1449] https://gopetition.com/signature/locate/10463936?utm_medium=rss Sun, 15 May 2011 11:50:48 UTC 10463936 mr james anfuso [Signature #1448] https://gopetition.com/signature/locate/10456787?utm_medium=rss Sat, 14 May 2011 03:36:38 UTC 10456787 Ms. Mary Schroeder [Signature #1447] https://gopetition.com/signature/locate/10452763?utm_medium=rss Fri, 13 May 2011 05:02:48 UTC 10452763 Mrs Katherina Landaveri [Signature #1446] https://gopetition.com/signature/locate/10451840?utm_medium=rss Fri, 13 May 2011 01:34:12 UTC 10451840 mr rich tobin [Signature #1445] https://gopetition.com/signature/locate/10451624?utm_medium=rss Fri, 13 May 2011 12:51:34 UTC 10451624 Mrs Anonymous [Signature #1444] https://gopetition.com/signature/locate/10451521?utm_medium=rss Fri, 13 May 2011 12:32:24 UTC 10451521 ms lydia baumgartner [Signature #1443] https://gopetition.com/signature/locate/10451416?utm_medium=rss Fri, 13 May 2011 12:09:43 UTC 10451416 Sarah Jordan [Signature #1442] https://gopetition.com/signature/locate/10451400?utm_medium=rss Fri, 13 May 2011 12:06:42 UTC 10451400 taylor mitchem [Signature #1441] https://gopetition.com/signature/locate/10451376?utm_medium=rss Fri, 13 May 2011 12:00:34 UTC 10451376 Ms. Colleen Chrisville [Signature #1440] https://gopetition.com/signature/locate/10451298?utm_medium=rss PLEASE

]]> Fri, 13 May 2011 11:43:39 UTC 10451298 Anonymous [Signature #1439] https://gopetition.com/signature/locate/10450548?utm_medium=rss Fri, 13 May 2011 09:37:50 UTC 10450548 miss Jennifer Atwood [Signature #1438] https://gopetition.com/signature/locate/10448129?utm_medium=rss Fri, 13 May 2011 01:34:59 UTC 10448129 Mrs Nicole Stott [Signature #1437] https://gopetition.com/signature/locate/10445217?utm_medium=rss Thu, 12 May 2011 01:05:47 UTC 10445217 Nadine Halston [Signature #1436] https://gopetition.com/signature/locate/10444919?utm_medium=rss Thu, 12 May 2011 12:19:44 UTC 10444919 Mrs. Maria DiMaria [Signature #1435] https://gopetition.com/signature/locate/10444865?utm_medium=rss Thu, 12 May 2011 12:11:07 UTC 10444865 Troy Berardo [Signature #1434] https://gopetition.com/signature/locate/10444461?utm_medium=rss Thu, 12 May 2011 11:11:09 UTC 10444461 Victoria Lockwood [Signature #1433] https://gopetition.com/signature/locate/10440807?utm_medium=rss Thu, 12 May 2011 12:41:24 UTC 10440807 Ms Laurie Smith [Signature #1432] https://gopetition.com/signature/locate/10440656?utm_medium=rss Wed, 11 May 2011 11:38:18 UTC 10440656 Anonymous [Signature #1431] https://gopetition.com/signature/locate/10440384?utm_medium=rss We need this! Who can afford the price otherwise????

]]> Wed, 11 May 2011 09:49:43 UTC 10440384 Mrs Cecile Van Nes [Signature #1430] https://gopetition.com/signature/locate/10440347?utm_medium=rss Wed, 11 May 2011 09:35:52 UTC 10440347